Health
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“A history of post-viral conditions,” an excerpt from Invisible Illness
There is a long record of associating epidemic infections with chronic physical symptoms, although rarely are these histories put in dialogue with stories of hysteria.
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New AI tools are helping some people manage Long COVID
RTHM and TurnTo recently debuted Long COVID intelligence platforms. Some have found them helpful, but others are concerned about AI.
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Telehealth is vital for people with Long COVID. Don’t let it disappear.
Changes to telehealth policies are more than an inconvenience. For many of us, critical infrastructure is in jeopardy, and we urgently need government policy to protect it.
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Despite Long COVID’s ongoing impact, research in Colombia is limited
One of the few Long COVID research studies in Colombia is testing cognitive rehabilitation therapy. This approach recently failed in a U.S. clinical trial.
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“Medically neglected” and “structurally erased”: International network appeals for ME advocate Nevra Elis
This fall, an international group of people known as Team Nevra has led an ongoing campaign to fundraise and help find care for Nevra Elis, an advocate living with severe myalgic encephalomyelitis (ME).
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The future of Medicaid is “really scary” for people with Long COVID
The deep cuts to Medicaid funding in the Trump administration’s spending bill of almost $1 trillion — as well as new requirements making Medicaid more difficult to obtain and maintain — will hit disadvantaged groups hard. For many with Long COVID, the cuts put their lives and well-being at risk.
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International Long COVID conference spotlights biomarker and mechanism research
The event, now in its third year, also revealed updates about clinical trials and healthcare for the disease.
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Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise
An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to their trial registration, while a handful excluded participants who experience it.
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Alice Wong, disability activist and luminary, dies at 51
Alice Wong platformed and uplifted people with Long COVID in her final chapter as a lifelong disability advocate and storyteller.
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As the American West faces increasing air pollution, protecting the right to mask is vital
Utah’s proposed ban became an important case study demonstrating the overlapping concerns between airborne pathogens and environmental air pollution. It highlighted the necessity of building coalitions between environmental, health and disability, and civil liberties groups in resisting mask bans as climate change is on track to worsen a variety of environmental public health threats, not…
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